UGH! Another MS Update…

Well, now that I’m almost 15 pounds heavier than I was two weeks ago, I thought I’d drop another update in the laps of those of you who have humored me by reading these little notes for this long.

I can honestly say that today was the worst day since I completed my IV treatments. If the sermon wasn’t really awesome today, I probably would’ve fallen asleep. Yeah. At 10:15 a.m.. Like, I could’ve curled up on the pew and probably would’ve woken the dead in the cemetery had I had the opportunity. I’ve felt pretty crappy all day, actually.

Here are two factors that I think may contribute. First, I forgot to take my oral steroids last night. Maybe that has something to do with my all-of-a-sudden lack of energy. Secondly, I haven’t taken my Mona Vie in two days. I take an awesome drink every morning loaded with anti-oxidants from the acai berry. It really seems to be giving me a huge boost. Or, maybe it’s a combination of missing both. Regardless, I feel anemic. I think i’ve tried to do too much, too soon after dealing with all of this. So, time to slow down.

I do have to say that emotionally, I haven’t been great, either. The fact that I’ve gained so much weight (not all due to the steroids…I’ve gained weight since last summer prior to my steroids) isn’t helping me psychologically. Gosh, I don’t even want to think about putting a bathing suit on. I’d be lucky if my right thigh can fit into the waste of last summer’s suit. It’s the medicine, though, that’s also contributing to my glum state of mind. I’ve actually cried twice today, both times, so out of character…I’m not a “feeler.” So that’s annoying!

I did receive a nice surprise, though, that really helped. My church has a prayer shawl ministry, and I was presented with a beautiful shaw that I will cherish for the rest of my life. Not only did someone take the time to make it for me, but I know that many of her prayers have been answered already: I’m getting better. The gesture was very meaningful to me.

Tomorrow is going to be a dull day. It must be. I’m going to remember to take my oral medication and I’m gonna take a nap; just for the heck of it, because I can. Meanwhile, for my friends who are also dealing with their own set of MS circumstances, I will pray that you all are listening to your bodies and that you are taking the times out your body needs. Now, just to follow my own advice…til next time.

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